Join us for the only event that crosses the globe time zone by time zone, celebrating achievements and advancements in the global rare disease community.
To join us as a presenter, email us at 24hoursofrare@thedashalliance.com with your organization name, your country/time zone and your proposed topic.
Click to Join Current Ongoing Session
Organizer
The Dash Alliance
Speaker Schedule
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Feb-28-23Day 1
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Mar-01-23Day 2
07:00 AM - 07:55 AM
Online Event
UK Kickoff
Speakers
Rebecca Stewart
Nicola Miller
08:00 AM - 08:15 AM
Online Event
Mens Mental Health
Speakers
David Ross
08:20 AM - 08:30 AM
Online Event
Timothy Syndrome Alliance
Speakers
Sophie Muir
08:35 AM - 09:00 AM
Online Event
Emerging from the Pandemic: Have We Changed?
Speakers
Ann Chivers
Global Executive Director
10:00 AM - 10:30 AM
Online Event
Cystinosis Society
Speakers
11:00 AM - 12:00 PM
Online Event
Scheuermanns Disease Fund
Speakers
Doug Strott
12:00 PM - 12:30 PM
Online Event
How to Create a Global Patient Registry: Lessons from the Moyamoya Foundation
Speakers
Catherine Stratton, MPH
Lisa Deck
01:00 PM - 01:30 PM
Online Event
CDHi
Speakers
Dawn Ireland
01:30 PM - 02:00 PM
Online Event
CACNA1A
Speakers
Lisa Manaster
02:00 PM - 02:30 PM
Online Event
Jacks Corner - SPG50
Speakers
Mike Dwyer
03:00 PM - 03:30 PM
Online Event
Cystic Fibrosis Research Institute
Speakers
Siri Vaeth
04:00 PM - 05:00 PM
Online Event
Project Sebastian - Batten Disease
Speakers
Christopher Velona
05:00 PM - 05:30 PM
Online Event
Averys Hope
Speakers
Caryl Harris
06:00 PM - 06:30 PM
Online Event
The Fred Files
Speakers
Cambria Lord
Creator
06:30 PM - 07:00 PM
Online Event
Beyond the Diagnosis Gallery Tour
Speakers
Patricia Weltin
07:00 PM - 07:30 PM
Online Event
CureGM1
Speakers
08:00 PM - 09:00 PM
Online Event
PFIC
Speakers
Lisa Manaster
09:00 PM - 10:00 PM
Online Event
Shaping Foundations
Speakers
02:00 AM - 03:00 AM
Online Event
Dubai Update
Speakers
Karim Smaira
03:00 AM - 04:00 AM
Online Event
Arabian Gulf University - Manama, Bahrain
Speakers
Cristina Skrypnyk, MD, PhD
05:00 AM - 06:00 AM
Online Event
Rare Disease and Disabilities Africa
Speakers
Jeff Lord, MS
06:00 AM - 07:00 AM
Online Event
Israel Update
Speakers
Sean Gordon